Living With Long COVID: LONGCOVID-EXPERIENCE

Background: One in ten people infected with COVID-19 presents persistent COVID, which consists of the presence of symptoms three months after the acute manifestations of COVID-19 and their persistence for at least two months, without being explained by an alternative diagnosis. The characteristics and clinical approach to persistent COVID syndrome are fairly well known, but not what the experience of people with persistent COVID is in relation to their daily life, their work life, and their experience with the healthcare received. Objective: to understand the experience of patients with persistent COVID in relation to the disease, the health care received and re-entry into the world of work

Methods: Qualitative, descriptive, phenomenological study, based on individual interviews. The study protocol will be registered in Clinicaltrials.gov. People with persistent COVID treated at the Parc Taulí Hospital will be included. Sampling will be by convenience, purposive and snowball and the sample size will be determined by data saturation. Semi-structured individual or group interviews will be conducted and the data will be analyzed following a reflective thematic analysis (Brawn and Clarke). The preliminary report will be triangulated with some participants and with the results obtained from a scoping review carried out by the research team.

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Key information

Conditions

Long COVID COVID-19 Chronic Disease Coronaviridae Infections Coronavirus Infections Disease Attributes Experience, Life Infections Lung Diseases Nidovirales Infections Pathologic Processes Pathological Conditions, Signs and Symptoms Pneumonia Pneumonia, Viral Post-Acute COVID-19 Syndrome Post-Infectious Disorders RNA Virus Infections Respiratory Tract Diseases Respiratory Tract Infections Virus Diseases

Age range

18 year–65 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Corporació Sanitària Parc Taulí

Sabadell, Barcelona, 08208, Spain

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

women and men diagnosed with persistent COVID between March '20 to the present according to WHO criteria (persistent symptoms three months after the acute manifestations of COVID-19 and lasting at least two months and cannot be explained by an alternative diagnosis).
treated at the Parc Taulí Hospital
from 18 to 65 years

Exclusion criteria

-people who do not understand or can communicate in Catalan or Spanish.

Treatment and study plan

Primary outcomes

Experience of the disease

Time frame: Up to three years

How is living with LongCOVID. Assessed through semi-structured interviews.
Experience with healthcare received

Time frame: Up to three years

How is the experience of patients with the healthcare received for their condition. Assessed through semi-structured interviews.
Experience with return to work

Time frame: Up to three years

What were the barriers and facilitators for returning to work after the disease. Assessed through semi-structures interviews.

Sponsors and collaborators

Lead sponsor

Corporacion Parc Tauli

Other

Collaborators

Universitat Autonoma de Barcelona

Registry information

Official study title

Living With Long COVID: LONGCOVID-EXPERIENCE Qualitative Study

Important dates

Study start: 2023
Primary completion: 2024
Study completion: 2024
First posted: Nov 7, 2023
Registry last updated: Apr 13, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed