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Completed

NCT Number: NCT04820998

Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care

Study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in the various social spaces and improve collaboration between professionals and parents

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Key information

Age range

Up to 18 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Chu St Etienne

Saint-Etienne, 42055, France

About this study

Identify the living conditions related to the housing of children with autism spectrum disorders (ASD) treated at the Léo Kanner Center (CLK), psychopathology department of the Saint-Étienne University Hospital. The aim is to describe through the trajectories of children with ASD and their families, their living conditions, and through interviews with professionals who support them, how the specificities related to precarious situations are identified and taken into account.

A qualitative survey, carried out by sociological interviews with families whose children are followed at the Léo Kanner Center (CLK) and the professionals who care for them, would make it possible to collect data on the development of a young child with autism in his home and more generally in his habitat.

The purpose of this study is to study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in different social spaces and improve collaboration between professionals and parents. The project aims to bring children with autism spectrum disorders (ASD) into a dynamic of access to human rights. He suggests three levers to achieve this: rely on a precise inventory of needs; work towards a transformation of representations; streamline access to healthcare and common law services.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Families having their child followed in the child psychiatry service of the Léo Kanner Center (CLK),
  • Children followed for Autism Spectrum Disorders (ASD),
  • Families who received informed information about the study and who co-signed a consent to participate in the study with the investigator.

Exclusion criteria

  • Opinion of the child's referring physician contraindicating inclusion
  • Refusal of one of the legal guardians to participate in the study

Treatment and study plan

Families

Other

Families's interviews about their precarious situation of living and the consequences on their autistic child care

professionals

Other

Interviews so as to know how the specifics of precarious situations are identified and taken into account by the professionals

Primary outcomes

  1. living conditions of children with Autism Spectrum Disorders (ASD)

    Time frame: hours 2

    To identify the living conditions related to the housing of children with Autism Spectrum Disorders (ASD) who are cared for at the Léo Kanner Center (CLK), psychopathology department of the University Hospital of Saint-Etienne.

Secondary outcomes

  1. Precarity

    Time frame: hours 2

    Families's interviews about their precarious situation of living and the consequences on their autistic child care

Other outcomes

  1. Professionals

    Time frame: hours 2

    Interviews so as to know how the specifics of precarious situations are identified and taken into account by the professionals

Sponsors and collaborators

Lead sponsor

Centre Hospitalier Universitaire de Saint Etienne

Other

Registry information

Official study title

Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care: Qualitative Study - Monocentric Study

Acronym: HaSPrEA

Important dates

Study start
2021
Primary completion
2022
Study completion
2023
First posted
Mar 29, 2021
Registry last updated
Jul 10, 2023

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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