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NCT Number: NCT04160715

Korean Idiopathic Pulmonary Fibrosis Registry

This is a multicenter prospective registry of IPF patients in South Korea. The Seoul National University Bundang Hospital is the coordination center for the Korean IPF Registry built by a collaboration of the Korean Interstitial Lung Diseases (ILD) Study Group.

Recruiting

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Key information

Conditions

Idiopathic Pulmonary Fibrosis Lung Diseases Lung Diseases, Interstitial Pulmonary Fibrosis Respiratory Tract Diseases

Age range

30 year–100 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Seoul National University Bundang Hospital

Seongnam-si, 13620, South Korea

Location status: Recruiting

Location contact

Jong Sun Park, MD

CONTACT

Jong Sun Park, MD

PRINCIPAL_INVESTIGATOR

About this study

Korean ILD Study Group includes investigators of 30 hospitals. Demographic, pulmonary function, laboratory data, chest CT findings and hospital course of IPF patients are collected.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • IPF patients diagnosed by multidisciplinary discussion

Exclusion criteria

  • Other interstitial lung diseases except for IPF
  • connective tissue disease-related ILD
  • exposure-related ILD

Treatment and study plan

Primary outcomes

  1. survival of IPF

    Time frame: through study completion, an average of 1 year

    lung function change (FVC, DLCO)

Secondary outcomes

  1. survival

    Time frame: through study completion, an average of 1 year

    death rate

  2. acute exacerbation

    Time frame: through study completion, an average of 1 year

    rate of acute exacerbation

  3. incidence of comorbidity

    Time frame: through study completion, an average of 1 year

    incidence of lung cancer

Study contacts

Contact information is provided by the study sponsor or research team.

Jong Sun Park, MD

CONTACT

[email protected]

Sponsors and collaborators

Lead sponsor

Seoul National University Hospital

Other

Registry information

Important dates

Study start
2016
Primary completion
2025
Study completion
2026
First posted
Nov 13, 2019
Registry last updated
Nov 13, 2019

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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