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Completed

NCT Number: NCT03930823

Interviews With Older People From Turkish Origin in Belgium About Advance Care Planning

Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails.

Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care. The Turkish ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from Turkish origin are lacking.

The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from Turkish origin in Belgium. Semi-structured interviews (in the native Turkish language) will be used.

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Key information

Conditions

Advance Care Planning Advance Medical Directives Ethnic Minorities Living Will Muslims Turkish Origin

Age range

65 year and older

Sex eligibility

All sexes

Study type

Interventional

Phase

Not applicable

Primary location

Faculteit Geneeskunde en Farmacie

Brussels, 1090, Belgium

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

People:

  • with Turkish origin who live in Belgium and are older than 65 years
  • who have also given informed consent to participate in this qualitative interview study

Exclusion criteria

  • Patients who are terminal ill which means having a life-limiting disease with irreversible decline and who are actively dying (actively dying is related to patients with days of survival). (41)
  • Having cognitive impairment

Treatment and study plan

interview

Other

One to one interview

Primary outcomes

  1. Knowledge about advance care planning from older people from Turkish origin in Belgium

    Time frame: 9 months

    This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you know in relation to advance care planning?

  2. Experiences about advance care planning from older people from Turkish origin in Belgium

    Time frame: 9 months

    This is a qualitative study. We developed a semi-structured interview guide with the following questions:Have you yourself ever thought about your future healthcare? Have you yourself ever looked up something about that?

  3. Views/preferences about advance care planning from older people from Turkish origin in Belgium

    Time frame: 9 months

    This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you think about discussing advance care planning now for the future? Even if you do not have such a serious illness at the moment, what are the advantages and disadvantages about discussing your wishes for the future, now?

  4. Attitudes about advance care planning from older people from Turkish origin in Belgium

    Time frame: 9 months

    This is a qualitative study. We developed a semi-structured interview guide with the following questions: Before you got severe illness, do you wish to discuss to someone your future wishes in advance? Why? Do you wish to give authority on your behalf to someone? Why?

  5. Barriers and facilitators for advance care planning from older people from Turkish origin in Belgium

    Time frame: 9 months

    This is a qualitative study. We developed a semi-structured interview guide with the following questions: In your opinion, what makes it easier or what would make it easier to talk about advance care planning? In your opinion, what makes it harder to talk about advance care planning?

Sponsors and collaborators

Lead sponsor

Universitair Ziekenhuis Brussel

Other

Registry information

Official study title

Advance Care Planning Among Older People From Turkish Origin in Belgium: An Exploratory Interview Study

Important dates

Study start
2019
Primary completion
2022
Study completion
2023
First posted
Apr 29, 2019
Registry last updated
May 11, 2023

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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