IConquerMS™ - a Patient-Powered Research Network for Multiple Sclerosis

iConquerMS™ is a research initiative developed by and for people with multiple sclerosis (MS) to contribute their health data and ideas to advance and accelerate research into MS. iConquerMS welcomes adults with MS and others interested in advancing MS research, children and teens with MS and their family members (via iConquerMS Kids & Teens) and MS caregivers (via iConquerMS Caregivers) to participate.

Recruiting

Interested in participating?

Request Info

Key information

Conditions

Multiple Sclerosis Autoimmune Diseases Autoimmune Diseases of the Nervous System Demyelinating Autoimmune Diseases, CNS Demyelinating Diseases Immune System Diseases Nervous System Diseases

Sex eligibility

All sexes

Study type

Observational

Primary location

Accelerated Cure Project

Waltham, Massachusetts, 02451, United States

Location status: Recruiting

Location contact

Sara Loud, MS, MSEE

CONTACT

[email protected]

781-487-0032

About this study

The purpose of this study is to create a Multiple Sclerosis Patient-Powered Research Network (MS-PPRN) that includes at least 20,000 people with multiple sclerosis (MS) who contribute data on their health and other topics. Survey data will be made available to research scientists who are studying MS and similar diseases. Our goal is to use this data to answer questions that researchers and people with MS have regarding the disease, including its causes, treatments, and other topics.

While the MS-PPRN is focused on enrolling people with MS, people without MS are also welcome to participate in this research study. Adults are invited to participate via iConquerMS, while children and teens are invited to participate via iConquerMS Kids & Teens. Adults who are MS caregivers may participate via the dedicated iConquerMS Caregivers site.

This study will be conducted online via the iConquerMS.org website. This is an ongoing study and will last for an indefinite period of time.

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

21 years of age or older at the time of informed consent or under 21 with parental consent and participant assent.

Exclusion criteria

Unwilling or unable to provide informed consent.

Treatment and study plan

Primary outcomes

Number of people with multiple sclerosis who experience health-related quality-of-life changes

Time frame: 1 year

Study contacts

Contact information is provided by the study sponsor or research team.

Sara Loud, MSEE, MBA

CONTACT

[email protected]

781-487-0032

Sponsors and collaborators

Lead sponsor

Accelerated Cure Project for Multiple Sclerosis

Other

Collaborators

Arizona State University
Ogilvy
Patient-Centered Outcomes Research Institute

Registry information

Acronym: iCMS

Important dates

Study start: 2014
Primary completion: 2030
Study completion: 2036
First posted: Jul 1, 2015
Registry last updated: Feb 18, 2025

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Recruiting