How Would the Creation of a Follow-up Methodology in Consultation Improve the Care of the Epileptic Patient?

The goal of this observationnal study is to identify the informative and educational needs of epilepsy patients to avoid interrupting the therapeutic pathway.

The main question it aims to answer are :

* Identify the patient's expectations of a nurse specializing in epilepsy in the areas of information, predictive elements of good care and adaptation to their state of health * Identify under-addressed or misunderstood themes * Identify patient resources and interventions already in place * Ensuring better continuity of care * Improve the knowledge of patients and their relatives about the management of their pathology

After a consultation with the neurologist (as part of their usual follow-up), the participants will be referred to a nurse for a semi-directive, individual interview, lasting 30 minutes and composed of open and closed questions. The announcement of the diagnosis, the quality of life or the factors contributing to the difficulties and their repercussions on a daily basis will be discussed during the interview.

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Key information

Conditions

Epilepsy Brain Diseases Central Nervous System Diseases Nervous System Diseases

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Hôpital Nord Franche-Comté

Trévenans, 90400, France

Who can participate

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Adult epileptic patients, over 18 years old
Patients with focal or generalized epilepsy
Patients affiliated or entitled to a social security scheme
Patients who have received informed information about the study and who have co- signed, with the investigator, a non-objection to participation in the study
Patients whose diagnosis has been made for at least 6 months

Exclusion criteria

Patients with intellectual disabilities
Minors
Untreated patients, in remission
Patients without affiliation to a social security scheme
Patients under guardianship or curatorship

Treatment and study plan

Primary outcomes

Identify the informative and educational needs of epileptic patients to avoid disrupting the therapeutic course by an interview with an nurse.

Time frame: At inclusion

Sponsors and collaborators

Lead sponsor

Hopital Nord Franche-Comte

Other

Registry information

Acronym: MAPE

Important dates

Study start: 2023
Primary completion: 2023
Study completion: 2023
First posted: Feb 23, 2023
Registry last updated: Jun 23, 2023

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed