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OpenTrials
Completed

NCT Number: NCT06287359

Experience of Parents/Carers of Children With Severe Motor Disabilities Suffering From Spinal Pain?

Parents of disabled children suffer from back pain more frequently than the general population. At present, the literature does not identify any specific factors responsible for this suffering.

For patients suffering from chronic back pain, there are specific treatment programmes in the Physical Medicine and Rehabilitation Department, with a focus on pain management.

The investigators would like to develop specific programmes for parents/carers of children/adolescents with severe motor disabilities.

To achieve this, it is important to gain a better understanding of the factors that contribute to the onset of pain.

With this in mind, the investigators are conducting a qualitative study to gain a better understanding of the day-to-day lives of these parents.

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Key information

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

CHU de Nîmes

Nîmes, Gard, 30029, France

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Parents or carers of children with severe motor disabilities complaining of spinal pain

Exclusion criteria

  • Parent/carer refusing to participate

Treatment and study plan

individual interviews

Other

Qualitative research with individual interviews

Primary outcomes

  1. Individual interviews

    Time frame: baseline

    To understand the lived experience of parents/carers during the daily care of their child by means of a phenomenological analysis of the interviews

Sponsors and collaborators

Lead sponsor

Centre Hospitalier Universitaire de Nīmes

Other

Registry information

Official study title

What is the Day-to-day Experience of Parents/Carers of Children or Adolescents With Severe Motor Disabilities Suffering From Spinal Pain?

Acronym: Vé-Quo-Pa-H-R

Important dates

Study start
2024
Primary completion
2024
Study completion
2024
First posted
Mar 1, 2024
Registry last updated
Jun 17, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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