ETOILE : A Feasibility Study in Pediatric Patient Education

This is a pilot feasibility study, of the quasi-experimental before-after, non-randomized, mono-centric type. Feasibility is assessed on process criteria (adoption, reach implementation, satisfaction). Intermediate effectiveness is assessed on the skill level of patients and their caregivers, before, after and at a distance from education. Patients' anxiety levels will also be assessed before, after and at a distance from the program. The level of health literacy will be assessed at the start of the study.

Inclusion criteria

• Criteria relating to the population studied: child between 0 and 18 years old, followed at Robert Debré hospital (Paris), by a doctor from the hematology and immunology department

• Of which the 2 holders of parental authority have been informed and have signed the consent
• Having 1 or 2 caregivers available to accompany him during FTE sessions
• 1 to 2 of their adult caregivers will be eligible for the ETOILE program and will be included in the study after their consent.
• Child with acute lymphoblastic leukemia, treated at Robert Debré Hospital (Paris), in the induction or consolidation phase
• Child going to receive or having received an allograft of hematopoietic stem cells at the Robert Debré hospital (Paris)
• Beneficiaries of a social security scheme or entitled to it,

Exclusion criteria

• Child not mastering the French language,
• Child with physical or cognitive disability to participate in the program,