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Enrolling by Invitation

NCT Number: NCT02911090

Endometriosis Pelvic Pain Interdisciplinary Cohort Data Registry

The purpose of this data registry is to prospectively collect data from patients referred to an interdisciplinary clinic for pelvic pain and endometriosis to investigate long-term patient outcomes, prognosis, predictors, causes, and treatment of pelvic pain and endometriosis.

Enrolling by Invitation

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Key information

Conditions

Endometriosis Dyspareunia Female Urogenital Diseases Female Urogenital Diseases and Pregnancy Complications Genital Diseases Genital Diseases, Female Genital Diseases, Male Male Urogenital Diseases Mental Disorders Sexual Dysfunction, Physiological Sexual Dysfunctions, Psychological Urogenital Diseases

Sex eligibility

Female

Study type

Observational

Primary location

BC Women's Hospital & Health Centre

Vancouver, British Columbia, V6H 3N1, Canada

About this study

The BC Women's Centre for Pelvic Pain and Endometriosis is the tertiary referral centre for endometriosis/pelvic pain in British Columbia, Canada. The Centre offers a unique interdisciplinary approach including minimally invasive surgery, hormonal and other medical therapy, pain education, physiotherapy, and CBT/mindfulness.

After informed consent, patients prospectively consent to data collection in the online registry. The registry consists of patient intake questionnaires (including validated measures), physical and ultrasound examination, review of medical records, surgical findings, and annual outcomes to 5 years.

The online data registry is housed in the Research Electronic Data Capture (REDCap) platform located at BC Children's Hospital.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • All new and re-referred patients at the BC Women's Centre for Pelvic Pain and Endometriosis.

Exclusion criteria

  • Patients at the BC Women's Centre for Pelvic Pain and Endometriosis seen for reasons other than chronic pelvic pain and/ or endometriosis as well as patients who decline to complete the online questionnaire.

Treatment and study plan

Data Registry

Other

Data Registry

Primary outcomes

  1. Patient-reported severity of chronic pelvic pain

    Time frame: 3 months

    Measured on a scale of 0 (no pain) to 10 (worst pain imaginable)

Sponsors and collaborators

Lead sponsor

BC Women's Hospital & Health Centre

Other

Collaborators

  • Canadian Institutes of Health Research (CIHR)
  • UBC Department of Obstetrics and Gynaecology

Registry information

Official study title

Endometriosis Pelvic Pain Interdisciplinary Cohort (EPPIC) Data Registry

Acronym: EPPIC

Important dates

Study start
2016
Primary completion
2028
Study completion
2028
First posted
Sep 22, 2016
Registry last updated
Aug 7, 2024

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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