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OpenTrials
Completed

NCT Number: NCT00001367

Diagnosis and History Study of Patients With Different Neurological Conditions

This protocol is a screening and natural history protocol, which allows for evaluation of

patients and families where neurological conditions are present for enrollment into other

studies and will also be used to screen healthy volunteers to create a pool of potential future HV matches for HMCS protocols. Through diagnostic evaluations, data will be collected for research use in this study.

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Key information

Conditions

Nervous System Disease Healthy Volunteer Nervous System Diseases

Age range

2 year–100 year

Sex eligibility

All sexes

Study type

Observational

Primary location

National Institutes of Health Clinical Center

Bethesda, Maryland, 20892, United States

About this study

This protocol is a screening and natural history protocol, which allows for evaluation of

patients and families where neurological conditions are present for enrollment into other

studies and will also be used to screen healthy volunteers to create a pool of potential future HV matches for HMCS protocols. Through diagnostic evaluations, data will be collected for research use in this study.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

  • INCLUSION CRITERIA:
  • Patients with neurological disorders and subjects with a family history of neurological conditions OR
  • Healthy volunteers: People age 18 or older who are generally in good health.

Exclusion criteria

  • Patients <2 years old.
  • Employees of HMCS in NINDS.

Treatment and study plan

Primary outcomes

  1. to screen patients with neurological conditions and family members of patients with neurological conditions for enrollment in additional research protocols

    Time frame: ongoing

    The goal is to screen patients with neurological conditions and family members of patients with neurological conditions for enrollment in additional research protocols. No investigational treatments will be administered on this protocol and the NIH physicians will be playing a consultative role to the patient s primary physician.

Sponsors and collaborators

Lead sponsor

National Institute of Neurological Disorders and Stroke (NINDS)

Nih

Registry information

Official study title

Diagnosis and Natural History Protocol for Patients With Different Neurological Conditions

Important dates

Study start
1993
First posted
Nov 4, 1999
Registry last updated
Jul 28, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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