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OpenTrials
Completed

NCT Number: NCT02617030

Developing a Program for Transition to Adult Care for Youth With Chronic Conditions : a Mixed Method Study

Investigation in 3 steps the transition of young people with chronic diseases. FIRST STEP: qualitative survey. Interviews with carers, young people and parents. Chronic Diseases studied: epilepsy, HIV, sickle cell disease, obesity. SECOND STEP: Delphi consensus survey. Vote on internet : carers, patients' associations, young people and family. Chronic Diseases studied: all. THIRD STEP: validation survey. Vote on internet : young people. Chronic Diseases studied: all.

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Key information

Conditions

Sex eligibility

All sexes

Study type

Observational

Primary location

Robert Debré Hospital

Paris, 75019, France

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Youth with chronic diseases after transfer to adult care
  • Parents or guardians of these youth.
  • Professionals caregivers from pediatric services and adult services involved in transition

Exclusion criteria

-

Treatment and study plan

Primary outcomes

  1. Agreement rate for each component of the transition program defined

    Time frame: 2 years

Sponsors and collaborators

Lead sponsor

Assistance Publique - Hôpitaux de Paris

Other

Registry information

Acronym: TRANSAD

Important dates

Study start
2014
Primary completion
2018
Study completion
2018
First posted
Nov 30, 2015
Registry last updated
Feb 3, 2023

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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