Cultural Adaptation of an Educational Tool in Medullary Thyroid Cancer

Primary Objectives

• To co-develop a culturally-adapted educational tool for the Latino/Latina MTC population using the previously developed MTCEducate.org as a framework. (Phase 1)
• To test, refine, and produce a culturally adapted educational prototype and is intended to assess participants' understanding after reviewing the decision aid as part of the iterative testing and refinement process (Phase 2)

Secondary Objectives

• To assess the tool's acceptability post-production among a broader population of Latino(a) MTC participants and caregivers using the Ottawa Acceptability Scale (Phase 3)
• To disseminate the educational tool to a broader population of Latino(a)s
• To summarize the clinico-demographics of educational tool users

Inclusion criteria

• Provision of signed and dated informed consent form
• Males and females; Age: ≥18 years old
• Identified ethnicity as "Hispanic" or "Latino/Latina"
• Ability to read, write, and speak Spanish
• Those who are pregnant are eligible to participate
• Have or will face this decision, including: a. Participant/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in Multi-Institutional Medullary Thyroid Cancer Collaborative Registry; b. Caregiver/family member - of Participant/survivor who has medullary thyroid carcinoma, as nominated by the Participant/survivor

Exclusion criteria

• Those < age 18
• Ethnic identity as non-Hispanic or non-Latino/a individual
• Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness as documented in the registry