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OpenTrials
Active, Not Recruiting

NCT Number: NCT02375841

Coping With Glioblastoma: A Study of Communication Between Physicians, Patients, and Caregivers

The purpose of this study is to learn more about the way physicians communicate with brain tumor patients. This study will look at how oncologists provide information about brain tumors, brain scan results, and treatment options. This study will look at how oncologists provide information about brain tumors, brain scan results, and treatment options. Ultimately, the investigators hope to use these findings to improve communication between patients, caregivers and their doctors.

Active, Not Recruiting

This study is active but is not currently recruiting participants.

Key information

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Patient Inclusion Criteria:

  • 18 years or older
  • Pathologic diagnosis of WHO grade IV glioma, as per MSKCC medical record or outside medical record.
  • In the judgment of the consenting professional, proficiency in English that will allow the participant to be able to complete study questionnaires and assessments. Many of the study assessments are available only in English.
  • At the time of consent, orientation to self, place, month and year

Caregiver Inclusion Criteria:

  • 18 years or older
  • Identified by the patient as a relative, friend, or partner with whom he or she has a significant relationship and who provides him or her informal (unpaid) care (i.e., physical or emotional assistance).
  • In the judgment of the consenting professional, proficiency in English that will allow to complete study questionnaires and assessments. Many of the study assessments are available only in English.

Oncologist Inclusion Criteria:

  • Treating Neuro-Oncologist in the Department of Neurology

Exclusion criteria

Patient Exclusion Criteria:

  • A patient will be excluded if in the opinion of his/her attending neuro-oncologist or the covering neuro-oncologist, he does not have the capacity to consent to the study based on clinical evaluation
  • Aphasia precluding comprehension and verbalization of consent to participate, in the estimation of the attending physician.

Caregiver Exclusion Criteria:

  • There are no caregiver exclusion criteria.

Treatment and study plan

psychometric tests, questionnaires and neurocognitive assessments

Behavioral

Primary outcomes

  1. number of responses from patients, to 3 yes/no questions

    Time frame: 2 years

    The curability of the patient's cancer (curability) The patient's prognosis (prognosis)The patient's goals of care should his/her condition worsen and he/she becomes critically ill (EOL)

  2. number of responses from caregivers to 3 yes/no questions

    Time frame: 2 years

    The curability of the patient's cancer (curability) The patient's prognosis (prognosis)The patient's goals of care should his/her condition worsen and he/she becomes critically ill (EOL)

  3. number of responses from physicians to 3 yes/no questions

    Time frame: 2 years

    The curability of the patient's cancer (curability) The patient's prognosis (prognosis)The patient's goals of care should his/her condition worsen and he/she becomes critically ill (EOL)

Sponsors and collaborators

Lead sponsor

Memorial Sloan Kettering Cancer Center

Other

Collaborators

  • Weill Medical College of Cornell University

Registry information

Important dates

Study start
2015
Primary completion
2027
Study completion
2027
First posted
Mar 3, 2015
Registry last updated
Mar 18, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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