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OpenTrials
Recruiting

NCT Number: NCT02803242

COPD Patient-Powered Research Network

The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.

Recruiting

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Key information

Conditions

Chronic Obstructive Pulmonary Disorder Bronchial Diseases Bronchiectasis Bronchitis Bronchitis, Chronic Chronic Bronchitis Chronic Disease Chronic Obstructive Lung Disease Disease Attributes Emphysema Infections Lung Diseases Lung Diseases, Obstructive Pathologic Processes Pathological Conditions, Signs and Symptoms Pulmonary Disease, Chronic Obstructive Respiratory Tract Diseases Respiratory Tract Infections

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

COPD Foundation

Washington D.C., District of Columbia, 20001, United States

Location status: Recruiting

Location contact

Gretchen M McCreary, MA

CONTACT

[email protected]

866-731-2673 ext. 396

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • 18 years or older that says yes to one of the following:
  • COPD diagnosis
  • Current or former smoker
  • Family history of respiratory disease
  • Symptomatic of respiratory disease

Exclusion criteria

  • Non-English speaking

Treatment and study plan

Patient reported outcomes

Other

Other names: Patient reported outcomes will be collected using self-report questionnaires to asses lung health status

Primary outcomes

  1. Patient Reported Outcome Measurement Information System-29 (PROMIS-29)

    Time frame: 15 years

  2. COPD Assessment Test (CAT)

    Time frame: 15 years

  3. Modified Medical Research Council (MMRC) Dyspnea Scale

    Time frame: 15 years

  4. Charlson Comorbidity Index (CCI)

    Time frame: 15 years

Study contacts

Contact information is provided by the study sponsor or research team.

Elisha Malanga

CONTACT

[email protected]

866-731-2673 ext. 309

Gretchen M McCreary, MA

CONTACT

[email protected]

866-731-2673 ext. 396

Sponsors and collaborators

Lead sponsor

COPD Foundation

Other

Collaborators

  • Kaiser Foundation Hospitals, Center for Health Research

Registry information

Acronym: COPD PPRN

Important dates

Study start
2014
Primary completion
2025
Study completion
2030
First posted
Jun 16, 2016
Registry last updated
Mar 10, 2022

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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