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Completed

NCT Number: NCT04813393

Compliance of Parents of Children With Cerebral Palsy to Home Program Questionnaire

This study aims to evaluate the psychometric properties of the Compliance of Parents of Children with Cerebral Palsy to Home Program Assesment Questionnaire (CPHP-Q), a caregiver-report for adherence and frequency of home program implementation of parents of children with Cerebral Palsy.

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Key information

Conditions

Cerebral Palsy Brain Damage, Chronic Brain Diseases Central Nervous System Diseases Nervous System Diseases

Age range

2 year–18 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Hacettepe University

Ankara, Turkey (Türkiye)

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • having a child with CP 2 to 18 years,
  • being a primary caregiver,
  • understanding of Turkish without an interpreter, and Turkish literacy,

Exclusion criteria

  • having any chronic illness or disability to prevent the home program,
  • haven't applied home program before.

Treatment and study plan

Questionnaire Development

Other

To evaluate psychometric the properties of the Compliance of Parents of Children with Cerebral Palsy to Home Program Assesment Questionnaire (CPHP-Q), a caregiver-report for adherence and frequency of home program implementation of parents of children with Cerebral Palsy.

Primary outcomes

  1. Compliance of Parents of Children with Cerebral Palsy to Home Program Assesment Questionnaire (CPHP-Q)

    Time frame: At baseline

    The CPHP-Q was administered as a caregiver-report questionnaire. It aims to measure home program adherence of parents of children with CP. İt consist of 22 items. The highest score 110, the lowest score 22.

Secondary outcomes

  1. Assessment of Life Habits for Children questionnaire (LIFE-H)

    Time frame: At baseline

    The questionnaire was designed and validated to assess the social participation of children with disabilities. It consists of 11 category: nutrition, physical fitness, personal care, mobility, interpersonal communication, social roles, education, recreational activities, responsibilities, housing, and social life. Each Life-H item is ranked on a 0 to 9 scale for accomplishment, where a score of 0 represents "not accomplished" and a score of 9 equals "no difficulty and no assistance."

Sponsors and collaborators

Lead sponsor

Hacettepe University

Other

Registry information

Official study title

Psychometric Properties of Compliance of Parents of Children With Cerebral Palsy to Home Program Questionnaire

Acronym: CoPoCPHP

Important dates

Study start
2020
Primary completion
2020
Study completion
2020
First posted
Mar 24, 2021
Registry last updated
Mar 29, 2021

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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