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NCT Number: NCT00830557

Collecting Medical Information and Tissue Samples From Patients With Pancreatic Cancer or Other Pancreatic Disorders

RATIONALE: Gathering medical information and collecting and storing samples of blood and tissue to test in the laboratory may help doctors develop better ways to screen people at risk for pancreatic cancer or other pancreatic disorders in the future.

PURPOSE: This clinical trial is collecting medical information and tissue samples from patients with pancreatic cancer or other pancreatic disorders.

Recruiting

Interested in participating?

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Key information

Conditions

Islet Cell Tumor Acute Pancreatitis Adenocarcinoma Adenoma Adenoma, Islet Cell Carcinoma Carcinoma, Islet Cell Carcinoma, Neuroendocrine Chronic Disease Chronic Pancreatitis Digestive System Diseases Digestive System Neoplasms Disease Attributes Endocrine Gland Neoplasms Endocrine System Diseases Hereditary Pancreatitis Neoplasms Neoplasms by Histologic Type Neoplasms by Site Neoplasms, Germ Cell and Embryonal Neoplasms, Glandular and Epithelial Neuroectodermal Tumors Neuroendocrine Tumors Pancreatic Adenocarcinoma Pancreatic Cancer Pancreatic Disease Pancreatic Diseases Pancreatic Neoplasms Pancreatic Neuroendocrine Carcinoma Pancreatitis Pancreatitis, Chronic Pathologic Processes Pathological Conditions, Signs and Symptoms Somatostatinoma

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Mayo Clinic Hospital in Arizona, Phoenix, Arizona, United States

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About this study

PRIMARY OBJECTIVE:

I. To maintain a resource (bank) of biospecimens and data collected from individuals being seen clinically for pancreas conditions to facilitate the discovery and development of (but not limited to) biomarkers of risk (including genomic and proteomic) and early detection as well as novel targeted therapies for pancreatic diseases with a focus on pancreatic cancer.

OUTLINE: This is an observational study.

Patients undergo blood, saliva, and previously obtained leftover tissue sample collection on study. Patients also complete questionnaires and have their medical records reviewed on study.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

  • Known or suspected pancreas disease including:
  • pancreas adenocarcinoma
  • islet cell cancer
  • pancreatic cysts
  • pancreatitis (hereditary, acute, or chronic)
  • Next of kin of deceased participant who did not complete participation before passing away

Exclusion criteria

  • Under the age of 18
  • Unable to provide informed consent
  • Prison inmates

Treatment and study plan

medical chart review

Other

baseline, 12 month and 36 months

Survey Administration

Other

baseline, 6 month, 12 month

Biospecimen Collection

Other

baseline

Primary outcomes

  1. Collection of clinical data, health and family histories by survey

    Time frame: baseline enrollment, 6 months, 12 months

  2. Collection of blood and/or tissue, fecal and oral specimens

    Time frame: baseline

  3. Collection of information regarding food preparation and intake by survey

    Time frame: baseline

Study contacts

Contact information is provided by the study sponsor or research team.

Adriana Delgado, MA

CONTACT

[email protected]

800-914-7962

Heather M Streich, CCRP

CONTACT

[email protected]

800-914-7962

Sponsors and collaborators

Lead sponsor

Mayo Clinic

Other

Collaborators

  • National Cancer Institute (NCI)

Registry information

Official study title

Biospecimen Resource for Pancreas Disease, a Data & Tissue Bank (Also Known as a Bio-repository, Bio-bank, Data & Tissue Database, Data & Tissue Registry, Etc.) to Help Advance Research in Pancreas Disease

Important dates

Study start
2000
Primary completion
2027
Study completion
2027
First posted
Jan 28, 2009
Registry last updated
Mar 9, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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