Characteristics and Outcomes of Childhood Moyamoya in the UK

This is a study to ascertain the number of children with moyamoya in the UK, their presenting features, clinical course and outcomes.

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Key information

Conditions

Moyamoya Arterial Occlusive Diseases Brain Diseases Cardiovascular Diseases Carotid Artery Diseases Central Nervous System Diseases Cerebral Arterial Diseases Cerebrovascular Disorders Intracranial Arterial Diseases Moyamoya Disease Nervous System Diseases Vascular Diseases

Age range

Up to 18 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Great Ormond Street Hospital for CHidlren NHS Foundation Trust

London, WC1N 3LU, United Kingdom

About this study

The study ahs 3 components:

Patient identification via the British Paediatric Surveillance Unit, and the 21 collaborating centres
Record review/patient interview to determine clinical features & outcomes
Centralised review of imaging data to ascertain radiological phenotypes

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Radiological diagnosis of moyamoya

Exclusion criteria

Refuse consent

Treatment and study plan

Primary outcomes

Number of children with moyamoya in UK

Time frame: 2 years

Secondary outcomes

clinical features & outcomes of childhood moyamoya

Time frame: 2 years
radioplogical features of childhood Moyamoya

Time frame: 2 years

Sponsors and collaborators

Lead sponsor

Great Ormond Street Hospital for Children NHS Foundation Trust

Other

Registry information

Important dates

Study start: 2014
Primary completion: 2015
Study completion: 2015
First posted: May 5, 2015
Registry last updated: Dec 2, 2021

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed