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Completed

NCT Number: NCT06074445

Caring for the Sexual Health and Wellbeing of Cancer Survivors and Their Intimate Partners: An Anonymous Survey

The aim of this survey study is to provide broad information as reported by cancer survivors and their intimate partners about both their sexual health and their experiences of care from the United Kingdom hospital cancer team, including their perspectives on factors that may hinder or help care. This information will be analysed and used to inform the questions asked in a separate, subsequent, qualitative study.

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Key information

Conditions

Cancer Behavior Communication Genital Diseases Mental Disorders Neoplasms Sexual Behavior Sexual Dysfunction, Physiological Sexual Dysfunctions, Psychological Sexuality Urogenital Diseases

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Bournemouth University

Bournemouth, Dorset, BH8 8AJ, United Kingdom

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Cancer survivors diagnosed with any type of cancer at age 18 years or over
  • A partner of someone diagnosed with any type of cancer at age 18 years or over
  • Cancer diagnosis must be no more than 10 years ago
  • Cancer survivors or their partners who experienced treatment and follow up care in the United Kingdom

Exclusion criteria

  • Cancer survivors who were diagnosed with cancer below the age of 18 years
  • Partners of cancer survivors who were diagnosed with cancer below the age of 18 years
  • Cancer diagnosis was more than 10 years ago
  • Cancer survivors/partners of survivors where the cancer treatment and follow up was not in the United Kingdom
  • Previous completion of the survey

Treatment and study plan

No intervention

Other

No intervention

Primary outcomes

  1. Number of participants who had a sexual health discussion(s) with the hospital cancer team at any point during cancer care

    Time frame: Up to 10 years prior to completing survey (discussion(s) about sexual health could have occurred at any point during cancer care)

    Sexual health discussion:19 examples of the sort of topics that may have been discussed in relation to sexual health

Secondary outcomes

  1. Number of participants with specific levels of impact on their sex lives by cancer and its treatments

    Time frame: From each individual participants' cancer diagnosis/cancer treatment until the date that they completed the survey

    As above

  2. Survey questionnaire to measure the nature and prevalence of care for sexual health that cancer survivors and their intimate partners self-report experiencing from the UK hospital cancer team.

    Time frame: Participants can report care received from prior to their cancer treatment through to their follow-up care (last 10 years only)

    An online survey questionnaire (no validated questionnaire available and therefore research created the questionnaire based on a literature reviews on sexual health in oncology

  3. Survey questionnaire to measure the nature and prevalence of the perceived barriers to and facilitators for care for sexual health as received by cancer survivors and their intimate partners when provided by the UK hospital cancer team.

    Time frame: Participants can report their perceptions from diagnosis through to their follow-up care (last 10 years only)

    As above

  4. Survey questionnaire to measure to what extent groups of cancer survivors and their intimate partners with differing characteristics receive differing care for their sexual health from the UK hospital cancer team.

    Time frame: Participants diagnosed with cancer in the previous 10 years.

    Participants' responses from outcomes 1-4 will be used toinform this outcome

Sponsors and collaborators

Lead sponsor

Bournemouth University

Other

Collaborators

  • Dorset County Hospital NHS Foundation Trust
  • Fortuneswell Cancer Trust
  • National Institute for Health Research, Applied Research Collaboration, Wessex

Registry information

Official study title

An Anonymous Survey Investigating Care for the Sexual Health of Cancer Survivors and Their Intimate Partners, as Provided by the United Kingdom Hospital Cancer Team

Important dates

Study start
2022
Primary completion
2022
Study completion
2022
First posted
Oct 10, 2023
Registry last updated
Oct 10, 2023

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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