Care in Multiple Sclerosis (MS)

Inclusion criteria

Aim 1 -

• aged ≥18-29 years
• diagnosis of RRMS (Fulfill international criteria for relapsing remitting (RRMS))
• 70% self-identifying as a Black, Hispanic, or poverty-impacted (up to 138% of the federal poverty level) individual,and
• fluent in English or Spanish.

Aim 2 -

• aged ≥18-29 years
• diagnosis of RRMS (Fulfill international criteria for relapsing remitting (RRMS))
• 70% self-identifying as a Black, Hispanic, or poverty impacted, and
• fluent reading in English or Spanish
• Pediatric onset MS (MS onset before age 18 and age at time of enrollment is 18-25) OR adult-onset MS (MS onset at age 18 or older and age at time of enrollment is 19-29)
• Disease duration below 8 years

Aim 3 -

Aim 3 will enroll the first 20 participants from Aim 2 who meet the following criteria:

• completed at least 80% of study data in the cross-sectional study/Aim 2.
• a total of 70% must self-identify as Black, Hispanic, or meet criteria for poverty impacted.
• interviews will be evenly split between participants with high (top quartile) and low (bottom quartile) of PROMIS-10 scores.

Exclusion criteria

• Primary or Secondary Progressive MS
• Inability to consent.
• MS relapse within 30 days prior to study entry
• Other major neurologic or psychiatric illness