Skip to main content
OpenTrials
Completed

NCT Number: NCT00793299

Burden of Cancer in Children: A Pilot Study to Investigate the Impact and Content of Video Illness Narratives

In order to gain a greater understanding of the full experience of children with life-threatening illness, this study will provide video cameras to ten to fifteen 10-18 years olds in active treatment for cancer, and instruct them to make video illness narratives over the course of 1-3 months. The narratives will be studied as an intervention; each of the participants will be administered a measure of physical symptoms (the Memorial Symptom Assessment scale 10-18) and a measure of self-esteem (the Rosenberg Self-Esteem Scale). The video narratives will also be analyzed for content by theme in order to understand the participants' experiences in their own words. Our hypothesis is that these narratives will provide insight into the lives of children with cancer, increase their self-esteem, and decrease symptom distress, and improve communication between patients and their doctors.

Completed

Looking for future studies?

Notify Me

Key information

Conditions

Cancer Neoplasms

Age range

10 year–18 year

Sex eligibility

All sexes

Study type

Interventional

Phase

Not applicable

Primary location

University of Rochester School of Medicine and Dentistry, Golisano Children's Hospital at Strong

Rochester, New York, 14642, United States

About this study

In addition to the above outcome measures:

The video narratives will also be analyzed for content by theme in order to understand the participants' experiences in their own words.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Diagnosed with cancer
  • Age 10-18
  • In active treatment for cancer
  • Followed at the Strong Memorial Hospital/Golisano Children's Hospital

Exclusion criteria

  • Non-English Speaker
  • Cognitively impaired so as to make data collection difficult

Treatment and study plan

Video Illness Narrative

Behavioral

video

Primary outcomes

  1. Memorial Symptom Assessment Scale

    Time frame: 3 months

Secondary outcomes

  1. Rosenberg Self Esteem Scale

    Time frame: 3 mopnths

Sponsors and collaborators

Lead sponsor

University of Rochester

Other

Registry information

Important dates

Study start
2008
Primary completion
2009
Study completion
2009
First posted
Nov 19, 2008
Registry last updated
Apr 27, 2015

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Related clinical trials

Published trials that share one or more normalized conditions with this study.