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NCT Number: NCT01822834

Bronchiectasis and NTM Research Registry

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions.

Recruiting

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Key information

Conditions

Non-CF Bronchiectasis Nontuberculosis Mycobacteria (NTM)

Age range

18 year–120 year

Sex eligibility

All sexes

Study type

Observational

Primary location

COPD Foundation

Washington D.C., District of Columbia, United States

Location status: Recruiting

About this study

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions. The goal of the Bronchiectasis Research Registry is to support collaborative research and assist in the planning of multi-center clinical trials for the treatment of NTM and non-CF Bronchiectasis, a progressive, non-curable disease of the lungs, which afflicts thousands of patients. The Registry will also be used to provide better insight into the study of the different types of Bronchiectasis, as well as the pathophysiology of the disorder. In 2012, in collaboration with NTM Info and Research, Inc (NTMir) and the consortium members, the COPD Foundation expanded the Bronchiectasis Research Registry to enroll patients with "non tuberculous mycobacteria (NTM) only". Prior to this time, the registry included individuals with Bronchiectasis, with or without NTM.

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Over the age of 18
  • non-CF Bronchiectasis
  • Nontuberculosis Mycobacteria (NTM)

Exclusion criteria

  • Under the age of 18
  • CF Bronchiectasis

Treatment and study plan

Primary outcomes

  1. Patient Recruitment and Data analysis

    Time frame: December 2050

    The COPD Foundation expects to assist at least 4 researchers (with patient recruitment and/or data analysis) annually.

Study contacts

Contact information is provided by the study sponsor or research team.

Delia Prieto

CONTACT

1-866-731-2673 ext. 272

Sponsors and collaborators

Lead sponsor

COPD Foundation

Other

Registry information

Important dates

Study start
2008
Primary completion
2050
Study completion
2050
First posted
Apr 2, 2013
Registry last updated
Mar 22, 2022

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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