Stanford University
Palo Alto, California, 94305, United States
NCT Number: NCT05132868
The purpose of this research study is to understand the impact of an educational video or pamphlet on the patient experience in a hereditary cancer genetic counseling program. In order to make this assessment, it is necessary to perform qualitative and quantitative research among patients in a hereditary cancer genetic counseling clinic.
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Notify Me18 year and older
All sexes
Interventional
Not applicable
Palo Alto, California, 94305, United States
Healthy volunteers accepted: No
Only the study team can determine whether someone qualifies for participation.
Inclusion criteria
Inclusion criteria
for: Limited English Proficiency (LEP), primarily Spanish speaking cohort
Inclusion criteria
for: Individuals with a personal or family history of breast cancer cohort
Inclusion criteria
for: Individuals with a personal or family history of prostate cancer cohort
Inclusion criteria
for: Individuals with a personal or family history of any type of cancer referred for germline testing based on a genetic variant identified during tumor genomic analysis for the patient or affected family member cohort.
Inclusion criteria
for: Individuals with a personal or family history of gastrointestinal or gynecologic cancer, referred because they or their affected relative screened positive for Lynch Syndrome based on either an immunohistochemistry test or evidence of mismatch repair deficiency in their tumor cohort.
Inclusion criteria
for: Individuals with a personal or family history of ovarian and/or pancreatic cancer cohort
Exclusion criteria
The primary intervention in this study is watching the video or reading the pamphlet in advance of the genetic counseling session, which overview the same information that we currently provide in-person/via telehealth during the genetic counseling session.
Patients will receive traditional genetic counseling
Time frame: 36 months
Impact will be defined as the number of questions asked by patient during the counseling.
Time frame: 36 months
Impact will be defined as the number of questions asked by patient during the counseling.
Stanford University
Other
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View the official ClinicalTrials.gov record (opens in a new tab)This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.
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