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OpenTrials
Completed

NCT Number: NCT03720028

Angelman & Rett Syndrome: Interaction and Communication

We aim to describe the communicative and sensory profile of children with Angelman syndrome or Rett syndrome and their use of augmentative and alternative communication. In addition, parents are surveyed regarding parent-child interaction and access to communication support.

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Key information

Conditions

Behavior, Child Behavior Child Behavior Communication Parent-Child Relations

Age range

1 year–14 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Katholieke Universiteit Leuven

Leuven, Vlaams-Brabant, 3000, Belgium

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Angelman or Rett syndrome

Exclusion criteria

  • none

Treatment and study plan

observation

Behavioral

Describe communication and sensory profile using standardized tests and observations.

Parental experiences

Behavioral

Survey parents' experiences with parent-child interaction and augmentative and alternative communication.

Primary outcomes

  1. Communication profile

    Time frame: 1 day One-time measurement

    Scores on language tests

  2. Parent interaction

    Time frame: 1 day One-time measurement

    Scores on social tests

Sponsors and collaborators

Lead sponsor

Universitaire Ziekenhuizen KU Leuven

Other

Collaborators

  • KU Leuven

Registry information

Official study title

Parent-child Interaction and Communication in Families Who Have a Child With Rett Syndrome or Angelman Syndrome

Important dates

Study start
2018
Primary completion
2019
Study completion
2020
First posted
Oct 25, 2018
Registry last updated
Dec 21, 2020

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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