Team-based Implementation of Hypertension Management in Childhood Lupus

Inclusion criteria

for EHR Data Collection:

• ICD-10-CM or SNOMED-CT diagnosis code for SLE
• Completed a pediatric rheumatology outpatient clinical visit at a participating implementation site within 12 months of each data collection timepoint

Inclusion criteria

for the Patient Survey Group:

• Diagnosis of childhood-onset Systemic Lupus Erythematosus (cSLE)
• Must have had a pediatric rheumatology clinical visit at a participating implementation site within 12 months of each data collection timepoint
• Age 12 years or older at enrollment

Inclusion criteria

for the Caregiver Survey Group:

• Individuals at least 18 years of age
• Parent or guardian of a child with cSLE who is followed by a care team at a participating site

Inclusion criteria

for the Lupus Care Team Member Survey Group:

• Individuals at least 18 years of age
• Health care team members within a pediatric subspecialty that manages patients with cSLE at a participating site

Inclusion criteria

for the Patient Interview Group:

• Diagnosis of childhood-onset Systemic Lupus Erythematosus (cSLE)
• Completed a clinical visit in the participating site's outpatient rheumatology clinic within the 12 months prior to enrollment
• Age 12 years or older at enrollment
• Able to provide verbal assent if below age 18 years of age or verbal consent if age 18 years and older. For minors, verbal parental/guardian permission (informed consent) is required.
• Have access to a device with audio or audiovisual conferencing capabilities

Inclusion criteria

for the Caregiver Interview Group:

• Individuals 18 years old or older at enrollment
• Parent or guardian of a child with cSLE who is followed by a care team at a participating pediatric rheumatology site and has completed a clinical visit within the 12 months prior to enrollment
• Able to provide verbal informed consent prior to the interview
• Have access to a device with audio or audiovisual conferencing capabilities

Inclusion criteria

for the Lupus Care Team Member Interview Group:

• Individuals ages 18 years of age or older at enrollment
• Health care team members that are in a pediatric subspecialty clinic that manages patients with cSLE at a participating site
• Able to provide verbal informed consent prior to the interview
• Have access to a device with audio or audiovisual conferencing capabilities

Exclusion criteria

for all Interview Groups:

• Unable or without cognitive capacity to participate in an interview, as determined by the investigator(s).
• No prospective interview participants will be excluded on the basis of sex, race, ethnicity, or language preference.