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NCT Number: NCT07591441

Endometriosis Self-Management Strategies

The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?

Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.

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Key information

Conditions

Endometriosis Female Urogenital Diseases Female Urogenital Diseases and Pregnancy Complications Genital Diseases Genital Diseases, Female Self-management Urogenital Diseases

Age range

16 year and older

Sex eligibility

Female

Study type

Observational

Primary location

About this study

The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?

Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • living in a European country
  • 16 years or older
  • having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis
  • fluent in a language spoken by the research team

Exclusion criteria

  • not meeting one of the inclusion criteria

Treatment and study plan

Primary outcomes

  1. Lived experiences self-managing endometriosis (Qualitative narratives through interviews and diary studies)

    Time frame: From enrollment until the end of focus group participation, up to four years

    People will discuss their lived experiences self-managing endometriosis, discussing what everyday actions they do to feel their best (qualitative narratives, lived experiences collected through interviews and diary studies)

Study contacts

Contact information is provided by the study sponsor or research team.

Erica I Selznick, MSPH

CONTACT

[email protected]

+32471854659

Sponsors and collaborators

Lead sponsor

Wageningen University and Research

Other

Collaborators

  • University of Edinburgh

Registry information

Official study title

Endometriosis Self-Management Strategies: Exploring Empowerment and Abandonment Through Lived Experiences

Acronym: EUmetriosis

Important dates

Study start
2026
Primary completion
2027
Study completion
2029
First posted
May 15, 2026
Registry last updated
May 15, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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