Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org

The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.

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Key information

Conditions

Amyotrophic Lateral Sclerosis Central Nervous System Diseases Metabolic Diseases Motor Neuron Disease Nervous System Diseases Neurodegenerative Diseases Neuromuscular Diseases Nutritional and Metabolic Diseases Proteostasis Deficiencies Spinal Cord Diseases TDP-43 Proteinopathies

Sex eligibility

All sexes

Study type

Observational

Primary location

Forbes Norris MDA/ALS Center

San Francisco, California, 94115, United States

About this study

Any person who has been diagnosed with ALS by a physician can enroll into this registry.

The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

There are no inclusion and exclusion criteria beyond the fact that a person needs to have ALS in order to enroll.

Treatment and study plan

ALS Registry

Behavioral

Interested in participating?

Completed

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Sponsors and collaborators

Lead sponsor

Forbes Norris MDA/ALS Research Center

Other

Collaborators

Muscular Dystrophy Association

Registry information

Official study title

Amyotrophic Lateral Sclerosis Web Based Patient Care Database

Important dates

Study start: 2006
Primary completion: 2010
Study completion: 2010
First posted: Mar 14, 2006
Registry last updated: Mar 2, 2010

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed